My Story

Hi, my name is Paula. Seven months ago, I gave birth to my beautiful baby boy, Kameron. When Kameron was born, there was a lot of focus on his head, but I didn’t think much of it and assumed it was just due to the birth process. On my last day in the hospital, a doctor approached me and mentioned that he suspected Kameron had sagittal craniosynostosis. With my permission, he took some pictures of Kameron’s head shape to send to CHI Temple Street for evaluation. I anxiously awaited the letter for our appointment, which arrived a month later.

When we arrived at the appointment, we met Dr. Dylan Murray and his amazing team. They confirmed that Kameron did have sagittal craniosynostosis and that his case was one of the more severe ones. They reassured us that this could be corrected with surgery. We made one of the hardest decisions of our lives: to proceed with the surgery at the best possible time when Kameron was 6 months old. The reassurance of having him in the hands of such an incredible team brought us some comfort.

Here’s a little information about sagittal craniosynostosis:

Sagittal craniosynostosis is a cephalic disorder that occurs when the sagittal suture fuses prematurely, limiting the lateral expansion of the skull and resulting in a long, narrow head shape. The base of the skull is usually unaffected. 

Kameron’s procedure involved removing and reconstructing parts of his skull.

I cannot thank Dr. Dylan Murray and his team enough for what they’ve done for my boy—it’s truly amazing.

As a small token of our gratitude, I am hosting a Quiz Night at Killarney Race Course on Friday, October 25th, starting at 7 p.m. More details will follow.

This online fundraiser is for anyone who cannot attend but would like to contribute. 

Every donation, no matter the amount, is greatly appreciated.

Thank you from the bottom of my heart ❤️